How can a mother's love and determination navigate the challenging landscape of healthcare for a child with Rett Syndrome? How can the power of digital storytelling impact not just the patient's journey, but also the healthcare community at large? Join us with our inspiring guests, Melanie Birch and Kristina McGuire, as they share their unique experiences and insights.
Melanie, a mother to a child with Rett Syndrome, unveils a heartfelt narrative of her daughter's journey and how digital storytelling has played a pivotal role. From using it as a communication tool with her daughter's therapists, school and classmates, to impacting medical students and her child's developmental pediatrician - this medium has proven to be a powerful vehicle for empathy and understanding. Hear about the profound impact of her digital story on a pharmaceutical company, and the importance of gratitude-focused narratives in healthcare.
Our other guest, Kristina, a Common Language Digital Storytelling facilitator enlightens us about her work with the Family Engagement in Research training program. As we learn about Kristina's various roles - as a nurse, a mother, and a peer advisor - we explore the extraordinary power of digital stories in sharing experiences, invoking emotions, and fostering understanding. Tune in for a stirring conversation about the transformative impact of digital storytelling on healthcare.
Watch the Digital Stories
Melanie’s Story Skiing Uphill
Kristina's Story That Day
Kristy's Story Hugs n Bugs
About the Kids Brain Health Network
Kids Brain Health Network is a national network of researchers and health professionals dedicated to helping children with neurodevelopmental disabilities and their families. They fund collaborative research, train the next generation of developmental neuroscientists, and mobilize our findings for impact.
Learn more about KBHN here.
About Leading Through Stories
Everyone has a story to tell—and what we do with that story can create lasting impact. Every episode, Leading Through Stories, helps unravel the how and why of digital storytelling with host Kristy Wolfe.
Life is made up of meaningful moments—which ones do you want to share?
This podcast is presented by Common Language DST, digital storytelling facilitation training for health and wellness changemakers.
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